CFTR Modulator Therapies
CFTR Modulator Therapies
Aug 13, 2024
cff.org
How does CF medication get developed and into your hands? Here's a little explainer about the process followed | Cystic Fibrosis Trust
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How does CF medication get developed and into your hands? Here's a little explainer about the process followed | Cystic Fibrosis Trust
2.4K viewsJun 5, 2017
FacebookCystic Fibrosis Trust
Incredibly, after a long-fought campaign by the CF community and the Trust, it's been almost 4 years since the access deal was agreed for the modulator drugs, Orkambi and Symkevi (Kaftrio was added later). As part of this deal, data needed to be collected on the effectiveness of these therapies ahead of a formal appraisal by the National Institute for Health and Care Excellence (NICE) and next month we're expecting to hear the initial outcome of this appraisal. We’re reassured by commitments by
5:46
Incredibly, after a long-fought campaign by the CF community and the Trust, it's been almost 4 years since the access deal was agreed for the modulator drugs, Orkambi and Symkevi (Kaftrio was added later). As part of this deal, data needed to be collected on the effectiveness of these therapies ahead of a formal appraisal by the National Institute for Health and Care Excellence (NICE) and next month we're expecting to hear the initial outcome of this appraisal. We’re reassured by commitments by
298 viewsSep 26, 2023
FacebookCystic Fibrosis Trust
Every CF warrior deserves a CFTR modulator and some day a cure. #cfwarriorproject #cfwarrior #cysticfibrosis #science #CapCut #bryanadams #bryanadamsheaven #stitch #foryou #foryoupage
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Every CF warrior deserves a CFTR modulator and some day a cure. #cfwarriorproject #cfwarrior #cysticfibrosis #science #CapCut #bryanadams #bryanadamsheaven #stitch #foryou #foryoupage
Apr 23, 2023
TikTokcf_warrior_project
A message from our Chief Executive, David Ramsden, on today's news that NICE have given approval for the once-a-day triple therapy, Alyftrek. This new once-a-day triple combination modulator drug provides a treatment option for some people who are not eligible or able to take Kaftrio and an alternative for people who are already taking Kaftrio. At the same time, NHS England have confirmed an extension to eligibility for Kaftrio and Alyftrek - giving access to more people with CF. Announcements a
1:39
A message from our Chief Executive, David Ramsden, on today's news that NICE have given approval for the once-a-day triple therapy, Alyftrek. This new once-a-day triple combination modulator drug provides a treatment option for some people who are not eligible or able to take Kaftrio and an alternative for people who are already taking Kaftrio. At the same time, NHS England have confirmed an extension to eligibility for Kaftrio and Alyftrek - giving access to more people with CF. Announcements a
11K views10 months ago
FacebookCystic Fibrosis Trust
Today, the National Institute for Health and Care Excellence (NICE) have given approval for the life-changing cystic fibrosis modulator drugs – Kaftrio, Symkevi and Orkambi - to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community. This is a really significant moment as it offers certainty and hope to thousands of people affected by CF, a life-long, life-limiting condition without a cure. Head to our web
1:24
Today, the National Institute for Health and Care Excellence (NICE) have given approval for the life-changing cystic fibrosis modulator drugs – Kaftrio, Symkevi and Orkambi - to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community. This is a really significant moment as it offers certainty and hope to thousands of people affected by CF, a life-long, life-limiting condition without a cure. Head to our web
8.4K viewsJun 20, 2024
FacebookCystic Fibrosis Trust
Trikafta is a CFTR modulator that has my body working more efficiently now which is great for my lungs but not for my metabolism. #CapCut #cfwarriorproject #cfwarrior #cysticfibrosis #weightgain #onekissisallittake #trikafta
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Trikafta is a CFTR modulator that has my body working more efficiently now which is great for my lungs but not for my metabolism. #CapCut #cfwarriorproject #cfwarrior #cysticfibrosis #weightgain #onekissisallittake #trikafta
8.3K viewsMar 16, 2023
TikTokcf_warrior_project
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Trikafta is a CFTR modulator which has helped minimize my respiratory issues with cystic fibrosis. #cfwarriorproject #cysticfibrosis #trikafta #curecf #eyeofthetiger #fight #hope
26.6K viewsFeb 7, 2023
TikTokcf_warrior_project
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Since 2012 when the first CFTR modulator, Kalydeco, was approved, modulator therapy has transformed cystic fibrosis care. By the end of 2024, 24,524 people with CF in the United States were prescribed Trikafta, according to data from the Patient Registry. However, 7.3% of people with CF were still not eligible for any CFTR modulators due to their age or genotype. For them, our work is not done. We are committed to finding a cure and advancing therapies for every person with CF. | Cystic Fibrosis
7.8K views11 months ago
FacebookCystic Fibrosis Foundation
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The approval of the triple-combination modulator represents a truly transformational milestone in the fight against cystic fibrosis. Thanks to you and your support, we continue to make remarkable progress in the lives of people with CF. Working together, we will reach our ultimate goal of a cure for all people living with CF. | Cystic Fibrosis Foundation
228.1K viewsOct 24, 2019
FacebookCystic Fibrosis Foundation
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George M. Solomon, M.D., assistant professor of medicine and director of the adult CF program at UAB - The University of Alabama at Birmingham, updates us on new developments in CFTR modulators that will help people living with cystic fibrosis who have a wider range of CFTR mutations. To learn more about drugs in development, visit our pipeline: http://on.cff.org/pipeline | Cystic Fibrosis Foundation
122.5K viewsAug 16, 2017
FacebookCystic Fibrosis Foundation
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Watch this animation to understand how CFTR modulators work for people with F508del mutations. To learn more about drugs in development to restore CFTR function, visit our drug development pipeline: http://on.cff.org/pipeline | Cystic Fibrosis Foundation
135.5K viewsApr 20, 2017
FacebookCystic Fibrosis Foundation
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Until recently, only about 60 percent of the cystic fibrosis population was eligible for CFTR modulator therapy. Now, with the approval of Trikafta, a triple-combination CFTR modulator therapy, more than 90 percent of people with CF could eventually have a highly effective therapy for the underlying cause of their disease. Alex Gifford, MD, an associate professor of medicine and the director of the adult CF program at Dartmouth-Hitchcock, discusses clinical trials that study the effects of CFTR
9.9K viewsApr 7, 2020
FacebookCystic Fibrosis Foundation
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Cystic Fibrosis Modulators in Pregnancy and the Impact on NBS Results (April 15, 2026)
22 views3 weeks ago
YouTubeCenter for Public Health Innovation
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CF Foundation | Community Update: Clinical Trials
8 views3 weeks ago
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CF Foundation | Cilia (No Audio)
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CF Foundation | Other Cystic Fibrosis Mutations
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New Medication for Cystic Fibrosis
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Gene mutations | What is cystic fibrosis?
25.3K viewsJun 22, 2017
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323.5K viewsApr 19, 2018
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What is cystic fibrosis, exactly?
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368.3K viewsJun 16, 2021
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2-Minute Neuroscience: Agonism, Antagonism, & Allosteric Modulation
100.5K viewsApr 26, 2020
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NACFC 2020: How Genetic-Based Therapies Could Restore CFTR Function
20.3K viewsOct 28, 2020
YouTubeCystic Fibrosis Foundation
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CF Foundation | How CFTR Modulators Work for People With One F508del Mutation
28.1K viewsDec 9, 2016
YouTubeCystic Fibrosis Foundation
3:43
CF Foundation | Will Corcoran
983 viewsNov 5, 2019
YouTubeCystic Fibrosis Foundation
1:05
CF Foundation | Trikafta Reactions
515 viewsOct 14, 2024
YouTubeCystic Fibrosis Foundation
8:31
Immunomodulators Part 1: Immunosuppressants
45.1K viewsApr 27, 2022
YouTubeProfessor Dave Explains
52:57
Understanding CF modulators
434 viewsDec 4, 2020
YouTubeCystic Fibrosis Canada
3:41
How Do CFTR Modulators Help The Body?
2 views6 months ago
YouTubeCystic Fibrosis Health Hub
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